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Rare diseases

דריה שיפילובה, לבורנטית במעבדה למלחמה בדבר בסיביר שברה מבחנה ובה חיידק ומתה
Mystery in Siberia: anti-plague lab worker dies after test tube breaks, nearly 200 isolated
Officials have not confirmed plague as the cause of Daria Shipilova’s death; she developed severe pneumonia days after the alleged exposure, while Russia’s health chief flew in and authorities opened a criminal investigation into safety failures
Eitan Gefen | 10.04.26
שאנל ויערית ביטון
'We thought it was a stroke': The rare disease that 'eats the brain'
A year after Yaarit Bitton was diagnosed with Creutzfeldt-Jakob disease, her daughter Chanel watched her lose speech, recognition and the person she had been; doctors say the incurable brain disorder is rare, but Israel sees a higher rate than many countries
Or Hadar | 07.02.26
טיפאני וודקינד, הזדקנות מואצת, פרוגריה
Living faster than time: 48-year-old woman lives in the body of an 80-year-old
Tiffany Wedekind of Ohio, one of the oldest known survivors of a rare genetic disorder that causes rapid aging, weighs 26 kilograms and stands 132 centimeters tall; the condition, linked to a genetic mutation, typically carries a life expectancy of 7 to 13 years
Eitan Gefen | 04.29.26
PrimeC
Israeli ALS drug shows promise in slowing disease progression
NeuroSense Therapeutics’ Prime, a drug developed in Tel Aviv, demonstrates a 30% slowdown in disease progression in phase 2 trials
Tzur Gueta | 04.15.25
Delayed diagnoses and misunderstood symptoms: The challenge of rare disease Lipodystrophy
Advocates Andra Stratton and Sharon Halperin are raising awareness of lipodystrophy, a rare fat disorder often misdiagnosed; through global networks, they aim to improve diagnosis, access to care, and support for patients in the US and Israel
Sharon Kidon | 03.25.25
הרפובליקה הדמוקרטית של קונגו אבולה מרכז סיוע
Unknown disease kills 143 in southwest Congo, local authorities say
Local medical teams report infected people had flu-like symptoms, including high fever and severe headaches; WHO says alerted to situation
Reuters | 12.04.24
חיידק אלים מסוג מנינגוקוק
The dangerous bacterium that killed an IDF soldier
Meningococcus is a bacterium that can cause serious and life-threatening disease but manifest via symptoms usually not paid attention to by individuals
Dr. David Shasha | 02.13.24
שני אחים הלוקים בתסמונת פרוגריה
Israeli mom with 2 boys suffering from progeria syndrome: 'I was told not to get attached to my sons
Sara Orshalim's two sons suffer from rare progeria syndrome which causes them to age rapidly and involves several other medical complications but says despite all that she wants to cherish the time they have together
Alexanda Lukash, Nir Cohen | 06.19.23
מילן לוי. חולה באנגיואדמה
'10 minutes to get to the hospital or I die': Israeli copes with rare disease
Millen Levi, 24, shares the pain and risks involved with hereditary angioedema – a rare disease that causes swelling and inflammation in the body's organs, and the revolutionary new treatments that ease it and even prevent passing the disease to the next generation
Millen Levi | 05.17.23
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